What happened to my family picture?

Okay all of you expert bloggers help me out here. Why did my family picture disappear when I changed my template?

Today has really been a bummer

Okay now time for me to complain. I started getting sick last night. I feel like I have a sinus infection. Then to make matters worse I got an achy flu also. It's time for me to take some pain management again cause I'm feeling the aches again. I hope it's a short lived flu.

Thursday's seizure schedule

Sorry guys I have to post this for my record. I'm not recording it anywhere else now.

9:54 a.m.
11:55 a.m.
3:00 p.m.
5:15 p.m.
7:20 p.m.
10:30 p.m.
11:55 p.m.

Thursday's update

Okay I'm feeling kind of silly that I sent a link to my blog to my whole address book, but oh well. Some of you will just be scratching your heads wondering what kind of crazy thing were doing. I'll give a little bit of info. on it. However, it is really hard to explain which is why I copy and paste my e-mails from Dr. Tamara. I can't really explain it. But here goes....last November Jaden was hospitalized because her seizures were getting to uncontrollable. The hospital in Ketchikan couldn't handle it and so they flew her to Seattle. Her and I spent the next 2.5 weeks in Seattle at Children's hospital. At one point she was up to over 110 seizures in one day. It was crazy. I'll try to make this short. So after 2.5 weeks she was sent home from the hospital still having 8-10 seizures a day and the worst part is that she was on 6 medications. 4 for seizures and 2 to counteract the side affects of the other 4. I was sick to my stomach. It felt so wrong to give that much medication to a little 4 yr. old. She had to take 11 pills and 2 liquids twice a day. I felt like I should be turned in for child abuse. What mother makes her child take that much medication and it's not like it was working. She was still having 8-10 seizures a day. Somebody try and convince me she needed that much medication....it won't happen. She was also crazy and I really mean crazy. She was constantly running away, but not headed for anywhere in particular. She was just crazy. She never sat still, she didn't really even walk. She was either bouncing or running. So I went from Seattle straight to our home in Las Vegas. The second day I was there she disappeared while I was changing Sam's diaper. When I went to throw his diaper away I noticed that the front door was open. I was looking everywhere for her. I even drove around in the car. I got my neighbor to help me look for her. He found her 1 mile away from our house running down the center of a 4 lane road barefoot. So now you see what I mean by crazy. She was high on drugs. Anyway, a family member highly recommended that we take her to a Dr. in Las Vegas that  works with your energy field. I didn't really care how she worked if there was a possibility of her helping Jaden. I took her to Dr. Tamara and within in 2 days Tamara had stopped her seizures. Within 10 days she had Jaden off all the medication. I really feel like, no let me rephrase that. I know Heavenly Father performed a miracle for that to happen. It was only through him that it was even possible to get her off the medication. She did great. She didn't have any seizures in December. In January she had a few and in February she started having more and it has escalated again. Dr. Tamara has continued to work on her everyday. Now you probably are asking how or what does she do. That I can't answer or even explain. I don't quite understand it myself. All I know is that she works with Jaden's energy field. I have no idea how working with ones energy can do anything. I only know that it works. I know it sounds crazy, but we both have put a lot of prayer into it and we feel like it is the direction Heavenly Father has led us in. So with all of that said here we are today.  I know this is what we are suppose to be doing for her, but it's still so frustrating to feel so helpless. Poor Tamara has put so much time into Jaden. She is amazing. Like I said, I don't fully understand her work, but I know it works. And I can tell you this, I will never take her to a hospital again for her seizures. I know I sound like one of those crazy alternative people, but I have been through 3 sets of neurologists from three different hospitals. Jaden has been hospitalized twice and I can only tell you that this last hospitalization and what happens to seizure patients makes the hair on the back of my neck stand up. I have never bad mouthed Drs. nor had a problem taking my kids to them, but I can tell you they are just as confused about seizures as the rest of us. The only thing they have on us is being able to understand exactly what a seizure is. They don't know why they happen. They don't know how to stop them. I have been on forums for parents with epileptic children and guess what. Everyones story is the same. Their child is still having seizures. Their kids get put on so many seizure drugs because they never work. They might work for a time and then they stop working and your kid is put on another drug. So it still might seem crazy not to have her on medication. Believe me I think about that, but let me throw this out there....she is going through the same things she went through in the hospital in Seattle only not as bad. The only difference is that this time she's not on medication. It really is the only difference. And let me give you another thought, while we were in the hospital the Neuros came around once a day. Their instructions were that they were not to be called unless she had more than 6 seizures in an hour. They would come around in the morning, look at my notes on her seizures and then say, well, it looks like we need to up the medication or we're going to start her on another medication. That was the routine each day. So maybe this will help you understand why I'm never going there again. I've done it twice and it doesn't work.

Anyway, I'm going to continue to copy and paste my e-mails from Dr. Tamara. Mostly so I have my own journal of it all. It's usually confusing, but I find it very interesting.

Here's todays e-mails:

Good morning Vicky--

I am hoping that your silence on the email is a good sign and that it means
Jaden had no seizures yesterday and last night. Oh, please, let this be
true, because that is what I got from her self organizing system this
morning and if it is not true then that means I am again communicating with
an intruder.

Yesterday's and this morning's sessions both felt like breakthroughs --
especially this morning! WOW! What a knot I found and was able to resolve --
provided of course, I was getting reliable info.

Please let me know how she is doing.

Love and Light
Tamara



From: vickitaylor@cox.net

Date: Thursday, February 28, 2008 11:55 AM

To: Self Creation Programs

Subject: Re: How is Jaden?

I'm sorry I didn't update you. No she didn't have a clear day.
She went until 3:00 p.m. yesterday without a seizure. She had one at 3:00 p.m.
and then she went to sleep for about 3 hours. Then she had 2 more before she
went to bed. And one during the night last night. Then one at 9:54 a.m today
that's (10:54 nevada time). Now she's back asleep. She's also getting sick, but
Jake has been sick all week and Sam is getting sick too. I feel so helpless. I
don't know what to do.

Vicki

Sam is so cute and sweet

I have to add a cute thing that happened today. Well it's cute, but it's also kind of sad. When Jaden had her seizure this afternoon Sam was sitting next to her on the bed. When it started he gasped and said, " Mom, Ja....en sei....ure." It was so cute, but at the same time I thought "How sad that even Sam knows what a seizure is now."

Today I was at a lunch date for visiting teaching. Jaden went over to our neighbors to play with April and I took Sam with me. He was so quiet. He sat there eating his food. We didn't hear a peep out of him. He is just so sweet and quiet all the time. One of my friends said, "that's not fair how do you get such a sweet baby." I laughed and said, "you get a Jaden first." 

update on Jaden for Wed.

So the day went pretty good well better than it did this evening. Jaden woke up
her normal self. She was fine until 3:00 this afternoon when she had her first
seizure for the day. Then this evening Ron and I had to go to new beginnings
with Jayley. She had a seizure while we were gone. When we came home Jaden was
in the middle of a poop mess again. It took us an hour to get that cleaned up.
Then Jaden had another seizure. That was about 20 min. ago. She's asleep now. My
sheets are washing again for the third time in the last 24 hours due to her
peeing and and vomiting. The last 10 seizures or so she has peed during the
seizure. Of course that's not her fault. I feel so helpless. I feel so sorry for
her too. You can tell it's taking a toll on her. At times she is so out of it,
but then again there are windows of her appearing perfectly normal. It's so
strange to watch her go from playing and being a total normal kid and then into
a seizure and then 30 seconds after the seizure out cold and sleeping for 3
hours. That's what she did this afternoon. Again, like I said I feel so
helpless. I feel like I've tried everything I can think of. I don't know what
else to do. Anyway, I think I'm just tired and frustrated so I will quit
babbling.

Thanks for all of your support.