Update on Jaden

Many of you have asked how Jaden has been doing since the surgery. I guess it's time to give everyone an update. As far as the physical aspect of the surgery, she has done great. She did great. Well, as far as the seizures go she hasn't done so good. She had 3 seizures in the month of August which was okay because they said she could have seizures for the first month. Then she had 7 seizures in September. I called her neurologist at the end of September to let him know that she had 7 that month. A nurse called me back to tell me that she spoke with the Dr. and he said that he wasn't concerned about her having 7 that second month. He said to tell me that sometimes some patients take a little longer for the brain to settle down. Well, by the 3rd week in October She was having anywhere from 4-6 seizures a night. So I called again and left an updated message. This time I got a call back from the Dr. He told me that was not what he wanted to hear and that Jaden has just become a very difficult patient. He said the surgeons like to be conservative and in some cases unfortunately they don't remove enough of the brain. So he tripled one of her medications and told me that when we meet in December we would discuss our next possibilities one of which will be a 2nd brain surgery. He then told me to keep him updated on how she is doing. Well, since I talked with him and we tripled her med. she has increased to 6-8 seizures a night. She ended up with a total of 105 seizures in the month of October. I am getting ready to call him again to let him know that it has only increased since we last talked. This is coinciding perfectly with how her cycle runs. No matter how much they increase her meds her seizures will continue to increase until it gets so out of control that she is hospitalized. We'll see how this cycle ends up, but so far it's only getting worse not better.